… continued from previous eleven articles on narcolepsy, where in the recent one discussed the herbal treatments used to treat symptoms of narcolepsy in a case study.
However, the focus will now move to the management of narcolepsy.
In this week’s article, I will introduce ways on how narcolepsy can be controlled by a narcoleptic as well as the family members.
How can you manage narcolepsy?
Communication is the key to managing narcolepsy or a narcoleptic patient. Family members must learn when and how to deal with a patient during attacks and must remain calm and supportive. For children counselling is important to help with the overwhelming feelings of helplessness or terror.
Stated above are three points one should remember when dealing with a narcoleptic person. Communication is how we share and convey information to one and another. Research shows that the percentage of verbal communication is 7%, for non-verbal it is 55% and for certain vocal elements it is 38%. (1)
This evidence portrays just how careful one must be when dealing with a narcoleptic patient, because possibilities are if they are tired then their attention span will be rather short, they might not effectively listen or respond to the best of their ability. Also, what if they are suffering from a cataplectic attack? One must use quick thinking to communicate as much as they can in order to help and find out what the narcoleptic person is in need of. Additionally, if one is awakened at night by someone who has narcolepsy in your family and are hallucinating, one would need to make sure to calm them down. Again, communication plays a great role as if they are screaming or having a panic attack, one has to make them feel safe and relaxed as quickly as possible as this may trigger a cataplexy attack.
Furthermore, educating oneself as much as possible about this disorder and how to deal with it is vital, since there could be a chance that the narcoleptic sufferer will become hurt. Doing a first aid course and perhaps asking the General Practitioner how to behave and provide treatment would be beneficial as everyone is unique therefore, each narcoleptic can have the different kind of aid that they would require.
Even though, seeing a loved one in pain is very difficult, heart breaking for some, it is essential that one provides 100% support. For the narcoleptic patient, it is hard enough to live their life constantly taking medication, feeling embarrassed, possibly having low self-esteem because of their disorder. So, it is the family’s duty, to make sure that they do their absolute best to remain calm, make their family member who has narcolepsy feel calm, not be embarrassed and make the narcoleptic patient feel comfortable too. This sort of support will make it much easier for the narcoleptic patient to continue with their life and feel as normal as possible.
In addition, I think there should be counselling for parents with narcoleptic child/children and children with narcoleptic parent(s), as this will educate them on how to behave and accept that their child will turn out to be fine. This would also be beneficial against stress and depression, which would then enable the family members to care for their loved ones with patience.
To be continued…